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Here’s a good one to attend to ask @JustinTomlinson @vickyfoxcroft @RJHilsenrath @EHRC about what support they can offer #LXPs #LivedExperiencePractitioners #SurvivorResearchers who are experiencing extreme levels of systemic discrimination within Mental Health orgs/academia > https://twitter.com/disrightsuk/status/1329110539793027074
> a heads up for each of the tagged ppl as I know there is little awareness outside of #LXP and #SUResearch of this. Basically £millions are currently spent on participatory research grants that ‘involve’ ppl with mental health conditions. Yet our own professors and academics >
> aren’t being awarded funds by the research council. Lived Experience academics aren’t even Primary Investigators or senior researchers in the teams that get the funding! Usually our place is either on voluntary advisory groups or the equivalent of research assistant posts >
> there’s a pretty excellent paper about this by @BeresfordPeter @DianaRose160 @SchrebersSister right here... written a few years ago & still had sod all effect, sadly 
https://www.tandfonline.com/doi/full/10.1080/09687599.2018.1423907 >>>
https://www.tandfonline.com/doi/full/10.1080/09687599.2018.1423907 >>>
> Currently the NHS spends £millions on Public & Patient Involvement in NHS Trusts. Service User Involvement was introduced because of Mad activism starting in the 60s. However we aren’t being employed to lead on this! #LivedExperiencePractitioners such as Peer Support Workers >
> are paid at the lowest bands. In some Trusts despite doing a BSc module as part of their training they are paid at Band 2, the lowest band - equivalent to domestic staff. They are often managed by staff with less qualifications or experience in #LXP working. #LXPs have no >
> career progression in most NHS trusts, with #LXPs being managed by ppl from other disciplines. It creates a concrete ceiling for people who work from an experiential lens, who are open about working with a MH condition. The distress that this causes us has led to many of us >
> being hospitalised or having our physical & mental health compromised. Many of my colleagues have experienced this, I have had 5 unplanned hospital visits/stays in the last 12m due to the impact this has had on my health. Currently we are not even counted in the #WDES >
>If the #WorkforceDisabilityEqualityStandard doesn’t measure and monitor roles that specifically require the use of a mental health disability within that post, how on earth can inequality and discrimination we face be monitored or addressed? Would love to discuss with any of u
