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What a year 2020 has been.
As we come towards the end of it, we want to say a BIG thank you to our friends & partners who’ve written for our blog over the year
Here’s a thread of our 2020 guest blog posts...
As we come towards the end of it, we want to say a BIG thank you to our friends & partners who’ve written for our blog over the year
Here’s a thread of our 2020 guest blog posts...
"It’s easy to imagine how nurses and doctors can save lives. It isn’t always so obvious how #DataSavesLives."
@TomJohnFoley wrote about how the data @NHSDigital holds can be used to help improve NHS services. https://understandingpatientdata.org.uk/news/using-nhs-digital-data-improve-care
@TomJohnFoley wrote about how the data @NHSDigital holds can be used to help improve NHS services. https://understandingpatientdata.org.uk/news/using-nhs-digital-data-improve-care
"Data of rare disease patients is often fragmented… it takes longer for people with rare diseases to get the right diagnosis & treatment"
@DrFiona_Pearce wrote a piece for @rarediseaseday on how patient data can help us understand complex rare diseases. https://understandingpatientdata.org.uk/news/guest-blog-how-can-patient-data-help-us-understand-complex-rare-diseases
@DrFiona_Pearce wrote a piece for @rarediseaseday on how patient data can help us understand complex rare diseases. https://understandingpatientdata.org.uk/news/guest-blog-how-can-patient-data-help-us-understand-complex-rare-diseases
"It has been estimated that only 15% of samples donated for research in the UK are used. Use MY data want to change that."
@DrSMarkham wrote a post about @useMYdata's campaign to make sure human tissue samples are always used to benefit patients. https://understandingpatientdata.org.uk/news/issue-tissue-towards-national-registry-human-tissue-sampling
@DrSMarkham wrote a post about @useMYdata's campaign to make sure human tissue samples are always used to benefit patients. https://understandingpatientdata.org.uk/news/issue-tissue-towards-national-registry-human-tissue-sampling
"We worked with Londoners to shape ‘the rules of the game’ to ensure that policy... will be developed in a way that is consistent with people’s expectations."
@KewleyMark wrote a piece about the @OneLondon4 citizens summit. https://understandingpatientdata.org.uk/news/creating-right-conditions-involve-public-policymaking
@KewleyMark wrote a piece about the @OneLondon4 citizens summit. https://understandingpatientdata.org.uk/news/creating-right-conditions-involve-public-policymaking
“‘There is no single truth about people's lived experience of the Covid-19 crisis.”
Miles Sibley @patientlibrary, wrote a powerful post arguing that collecting & analysing qualitative data is crucial to understanding how #COVID19 affects people’s lives. https://understandingpatientdata.org.uk/news/there-no-single-truth-about-covid-19
Miles Sibley @patientlibrary, wrote a powerful post arguing that collecting & analysing qualitative data is crucial to understanding how #COVID19 affects people’s lives. https://understandingpatientdata.org.uk/news/there-no-single-truth-about-covid-19
“Helping to bring patients closer to decision making around data is not a single action, it’s a process that needs to start early.”
@waltpasquarelli @ODIHQ shared 3 lessons from setting up the data governance for @INSIGHTeyehub. https://understandingpatientdata.org.uk/news/lessons-setting-insight-data-trust-advisory-board
@waltpasquarelli @ODIHQ shared 3 lessons from setting up the data governance for @INSIGHTeyehub. https://understandingpatientdata.org.uk/news/lessons-setting-insight-data-trust-advisory-board
“RECOVERY has clearly demonstrated the value of routine data in supporting clinical trials.”
Dr Marion Mafham wrote about the #RECOVERYtrial, which discovered that dexamethasone reduces death in ventilated #COVID19 patients by a third.
@Oxford_NDPH https://understandingpatientdata.org.uk/news/role-routine-data-fight-against-covid-19
Dr Marion Mafham wrote about the #RECOVERYtrial, which discovered that dexamethasone reduces death in ventilated #COVID19 patients by a third.
@Oxford_NDPH https://understandingpatientdata.org.uk/news/role-routine-data-fight-against-covid-19
Thanks again to all our brilliant guest writers 
Keep a look out for more blog posts from our community in 2021!
Keep a look out for more blog posts from our community in 2021!
