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1/ Hey, @fordnation. Im a 32 yr old & I lost my 1st parent at 26. It devastated me. A few yrs later my remaining parent (Mom) was dx with Alzheimers at 63. Shes now 65. She got a bed in LTC Jan 2020.
2/ in the last 12 mths, Ive only been allowed to see my Mom 3 times. For 30 mins. Outside. No hugs. Do you know how it feels to watch a parent die? I watched my Dad be removed from life support, and pass away over the course of 2 days. It still haunts me BUT I was with him.
3/ I could lay with him. Hold his hand. Sing to him as he left this earth. Now, I am watching my Mom die. Her brain is failing her. The consequences of her having hardly any activities, outings, fresh air, and visits over the last 12 mths has had an enormous toll on her.
4/ she is fading away. I am 1 among thousands in Ontario watching their parent slowly fade away and die. What upsets me the most. I cant hug her. I cant hold her hand. I cant make any memories for myself. Video chats are not enough for me.
5/ please show me the research explaining why ppl like my Mok cannot have more than 2 essential caregivers. She has 4 kids, 3 daughter in laws, and 1 son in law. She has 5 siblings, 3 grandchildren. And friends. Other than summer when I could go, she hasnt seen anyone else.
6/ Show some empathy. I am 32. I have 1 parent left. She is fading in front of my eyes. Please, let me make memories with her. Let me CARE for her in a way staff cannot. Its not their fault. Its my duty as her child. You are stripping me of the privilege of caring for her.
7/ The last time I saw my Mom, I looked back as I left. She looked sad. Standing there outside. Slouched over. She just wanted a hug. I could not give it her. It pained me so much. I felt helpless. I let her down. I could not give her the human touch she so craved.
