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Right, back to the day job for a bit, and a little thread about PROs.
Patient-reported outcomes. It's great to see this topic becoming mainstream now and many people wanting to embed their use in direct care as one element of enhancing digital communication with clinical teams
Patient-reported outcomes. It's great to see this topic becoming mainstream now and many people wanting to embed their use in direct care as one element of enhancing digital communication with clinical teams
PROs in support of direct care have been shown to improve outcomes overall as shown by @EthanBasch1
in 2017, they can support self-management and when aggregated can give a detailed assessment of symptom burden to inform service configuration to meet needs
in 2017, they can support self-management and when aggregated can give a detailed assessment of symptom burden to inform service configuration to meet needs
That's even before any data linkage is done and any comparisons made or analyses about value (this latter is complicated and needs expert scrutiny)
But we also know that the best way for people to complete a PRO should be after digital communication is well established and preferably in a person' s own home. This means entering the data into an application
To be meaningful this data must be useful to the person entering it. It must also be able to pass into structured databases such that it can be surfaced in the clinical system or linked with other data for analysis.
And herein lies the challenge to be surmounted
And herein lies the challenge to be surmounted
Interoperability for PROs is yet to be fully resolved. It is not sufficient to define a process for data exchange eg through FHIR. Semantic interoperability must also be addressed.
This is a significant piece of work that is relevant to patient care and to the research communities. Suppliers need to work with us on this.
And finally. We must recognise the limitations of PROs as not providing the whole story. Goals, preferences are not captured. Some things are sacrificed in the name of standardisation that need to be borne in mind.
And that is why there is ongoing work with @NABedlington @msjuliedavey @dr_zoe_wainer and many others to describe the relationship between person-centred and value-based care, and how healthcare systems can take account of that. More on this work later this year...
